HOME

 

 

    NEWS

INTERVIEWS

RESOURCES

ABOUT

View by:

 SUBJECT

 THEME

QUESTION

  TERM

 PERSON

   EVENT

Genetic Discrimination

One ethical issue on the genetic horizon that has already begun to take focus is genetic discrimination."United Methodist Church Genetic Task Force Report to the 1992 General Conference," p. 118 (hereinafter: Methodist).A possible scenario runs like this. In the next few years researchers will identify and locate most, if not all, genes in the human genome that either condition or in some cases cause disease. Already we know that the gene for Cystic Fibrosis is found on chromosome 7 and the gene for Huntington’s disease on chromosome 4. Alzheimer’s disease is probably due to a defective gene on chromosome 21, and certain incidences of colon cancer to one on chromosome 2. Disposition to muscular dystrophy, sickle-cell anemia, Tay-Sachs disease, certain cancers and numerous other diseases also have locatable genetic origins. More knowledge is yet to come. When it comes, it may be accompanied by an inexpensive method for testing the genome of each individual to see if he or she has any genes for any diseases. Screening for all genetic diseases may become routine for newborns, just as testing for phenylketonuria (PKU) has been since the 1960s. A person’s individual genome would become part of a data bank to which each of us, as well as our health care providers, would have future access. The advantage is clear:  medical care from birth to grave could be carefully planned to delay onset, appropriately treat, and perhaps even cure genetically based diseases.

This is an unlikely scenario, however. As good as it may sound, the specter of genetic discrimination may slow it down, if not retard it completely. Any grand plan to employ new genetic knowledge for preventive health care for Americans is likely to be impeded, if not blocked entirely, by the U.S. system of financing medical care through commercial insurance. The problem begins with insurability, and may end up in a form of discrimination that for genetic reasons prevents certain individuals from obtaining employment and, hence, medical services. Even with a government regulated program of access to basic health services, the need to purchase supplemental insurance to cover serious diseases makes many of us with certain genetic configurations vulnerable to discrimination.

Insurance works by sharing risk. When risk is uncertain to all, then all can be asked to contribute equally to the insurance pool. Premiums can be equalized. Once the genetic disorders of individuals become known, however, this could justify higher premiums for those demonstrating greater risk. The greater the risk, the higher the premium. Insurance may even be denied those whose genes predict extended or expensive medical treatment."The Church and Genetic Engineering," Pronouncement of the Seventeenth General Synod, United Church of Christ, Fort Worth, Texas, 1989, p.4 (hereinafter: UCC). See the interpretation and commentary...

For three-quarters of Americans, medical insurance is tied to employment. Among the Fortune 500, twelve companies already report using genetic screening for employment purposes. Although screening in the past was justified initially for public health purposes, employers may increasingly be motivated to use screening to cut premium costs for the medical insurance they pay on behalf of employees. Underwriters already deny or limit coverage to some gene-related conditions such as sickle-cell anemia, atherosclerosis, Huntington’s disease, Down’s syndrome, and muscular dystrophy.In December 1993 China announced a program of abortions, forced sterilization, and marriage restrictions to "avoid new births of inferior quality and heighten the standards" of the Chinese people....This list could increase.. Between thirty to forty million persons in the United States currently live with insufficient or no medical coverage; and, despite its promises for a better life, HGP could inadvertently add a whole new class of poor and uninsured people.

Email link | Printer-friendly | Feedback | Contributed by: Dr. Ted Peters

Topic Sets Available

AAAS Report on Stem-Cells

AstroTheology: Religious Reflections on Extraterrestrial Life Forms

Agency: Human, Robotic and Divine
Becoming Human: Brain, Mind, Emergence
Big Bang Cosmology and Theology (GHC)
Cosmic Questions CD-ROM Preview...
Cosmic Questions Interviews

Cosmos and Creator
Creativity, Spirituality and Computing Technologies
CTNS Content Home
Darwin: A Friend to Religion?
Demystifying Information Technology
Divine Action (GHC)
Dreams and Dreaming: Neuroscientific and Religious Visions'
E. Coli at the No Free Lunchroom
Engaging Extra-Terrestrial Intelligence: An Adventure in Astro-Ethics
Evangelical Atheism: a response to Richard Dawkins
Ecology and Christian Theology
Evolution: What Should We Teach Our Children in Our Schools?
Evolution and Providence
Evolution and Creation Survey
Evolution and Theology (GHC)
Evolution, Creation, and Semiotics

The Expelled Controversy
Faith and Reason: An Introduction
Faith in the Future: Religion, Aging, and Healthcare in the 21st Century

Francisco Ayala on Evolution

From Christian Passions to Scientific Emotions
Genetic Engineering and Food

Genetics and Ethics
Genetic Technologies - the Radical Revision of Human Existence and the Natural World

Genomics, Nanotechnology and Robotics
Getting Mind out of Meat
God and Creation: Jewish, Christian, and Muslim Perspectives on Big Bang Cosmology
God, Humanity and the Cosmos: A Textbook in Science and Religion
God the Spirit - and Natural Science
Historical Examples of the Science and Religion Debate (GHC)
History of Creationism
Intelligent Design Coming Clean

Issues for the Millennium: Cloning and Genetic Technologies
Jean Vanier of L'Arche
Nano-Technology and Nano-ethics
Natural Science and Christian Theology - A Select Bibliography
Neuroscience and the Soul
Outlines of the Science and Religion Debate (GHC)

Perspectives on Evolution

Physics and Theology
Quantum Mechanics and Theology (GHC)
Questions that Shape Our Future
Reductionism (GHC)
Reintroducing Teleology Into Science
Science and Suffering

Scientific Perspectives on Divine Action (CTNS/Vatican Series)

Space Exploration and Positive Stewardship

Stem-Cell Debate: Ethical Questions
Stem-Cell Ethics: A Theological Brief

Stem-Cell Questions
Theistic Evolution: A Christian Alternative to Atheism, Creationism, and Intelligent Design...
Theology and Science: Current Issues and Future Directions
Unscientific America: How science illiteracy threatens our future
Will ET End Religion?

Current Stats: topics: >2600, links: >300,000, video: 200 hours.