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Oversight and Accountability

The appearance of new technology can evoke apprehension and engender uncertainty among segments of the population about its uses. Where these concerns are related to issues having important ethical and social implications, certain levels of oversight are appropriate. But it is important to create new oversight mechanisms or regulatory burdens only when there are compelling reasons for doing so. Public oversight should be in proportion to the seriousness of the concerns raised.

Although some adjustments in the current system of oversight are necessary, no new regulatory mechanisms are needed at the present time to ensure responsible social and professional control of such research in the United States. A system that has, over time, protected the public health and safety while simultaneously providing a setting that is congenial to the advancement of science has much to offer. The basic framework is sound and includes several attractive features:

  • It is pluralistic, with multiple access points for those who wish to be heard and influence public policy.

  • It is democratic, with public involvement encouraged on different levels and at different points in the drafting, consideration, and promulgation of public policy.

  • It is flexible, in that it can adapt to accommodate cutting-edge research and innovative technology.

  • It is compatible with the values of scientific freedom and public accountability.

  • It supports private-public partnerships consistent with the distinct yet complementary goals of the private sector and government.

Despite these strengths of the existing framework for oversight of research, as the science advances, new issues may emerge that will challenge acceptable ethical practices and public policy. As human stem cell research proceeds, there should be opportunities for public reconsideration of the need for any special institutional oversight, and we strongly recommend an open, informed, and continuing public discourse on these matters.

Email link | Printer-friendly | Feedback | Contributed by: AAAS DoSER and the Institute for Civil Society

Go to Genetics Topic Index
Stem Cell Research and Applications: Monitoring the Frontiers of Biomedical Research
Preface
Findings and Recommendations
The Science of Stem Cell Research and Potential Therapies
     Current Status of Human Stem Cell Research
     Sources and Characteristics of Human Stem Cells
        Human Embryonic Stem Cells
        Human Embryonic Germ Cells.
        Human Adult Stem Cells
     The Clinical Potentials for Stem Cell Products
     Some Examples of Treatments for Major Diseases
        Type 1 Diabetes in Children
        Nervous System Diseases
        Primary Immunodeficiency Diseases
        Diseases of Bone and Cartilage
        Cancer
     Uses in Research
        A New Window on Human Developmental Biology
        Models of Human Disease that are Constrained by Current Animal and Cell Culture Models
        Transplantation
        Gene Therapy
Spiritual and Religious Contexts
Ethical Concerns
     The Moral Status of Human Stem Cells
     Moral Issues Surrounding the Sources of Stem Cells
Sources of Stem Cells and Guidelines for Use
Justice Considerations
Funding
Oversight and Accountability
     Private Sector Oversight
     Intellectual Property Considerations
     Public Sector Oversight
Conclusion
Appendix I: Working Group Members
Appendix II: Staff
Appendix III: About AAAS and ICS

Source:

Audrey R. Chapman, Ph.D., Mark S. Frankel, Ph.D., and Michele S. Garfinkel, Ph.D. for the American Association for the Advancement of Science and The Institute for Civil Society

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